To my dear WordPress friends; I underwent an endoscopic sinus surgical procedure last Thursday. I have been forced to recuperate quietly at home since last week. I wasn’t sure I would be able to keep myself still for so long; however, the procedure and the effects of coming out of anesthesia to this “not so young body,” is definitely keeping me intact on my somewhat old but comfy sofa with my loving dog lying beside me.
With that being said, I am feeling stronger in mind but still weak in body. I am using my down time very effectively, however.
I received a lovely tribute in our local paper about my book, Our Special Chiłd: Jason’s Story. It was well received and I am very thankful to the reporter for a well written article. The book is available on http://www.amazon.com and http://www.barnesandnoble.com., as well as http://www.tatepublishing.com and my site at www. scrapperjudedesigns.com. If you purchased my book, thank you. I would be thankful if you would write a review for me on any of these sites.
I am working on organizing my first book signing in our community here in Pennsylvania next month. My publisher sent outa ton of news feeds to media contacts within a 20 mile radius of my house and I am starting to follow up with them.
Yesterday I read a FaceBook post in a private cerebral palsy group I am following. I was so affected by her words, putting me in tears. They were tears of deep anger. She is a young mother caring for her special needs child and received a notice that she may lose her son’s SSI benefits for a reason so lame. I pictured a beaurocratic person sitting behind a desk who has no clue of what this woman is dealing with. He has blinders on and only sees what he interprets in laws that are full of red tape baloney.
Maybe it is unfair to blame this person since he didn’t write the law, only doing his job. I can guarantee you the laws are written so precisely, full of words that can be interpreted in different ways. I believe in my heart this is done on purpose in order to strategically stop the flow of money. Our government really is not in the business to help young parents with special needs. If our politicians are forced to pass these laws, I can guarantee you they are going to make it very difficult for the funds to be distributed. Let’s face it, the parents of special needs children are lost in the everyday political bull shit we all read and hear in the news.
I don’t accept this. This is why I wrote my book. Jason and I need to make some difference. I will do everything in my power to take one step at a time to make sure Jason’s life is honored and his legacy will live on to make a difference in helping special needs children and their families. I will dedicate the rest of my life taking one step at a time to reach my goal. Someone out there will hear me.