This courageous woman opened up her heart in this post. I understand her pain both physically and emotionally. I had a son who was trapped in a body like she describes. He was not able to communicate. Belinda, I am so sorry for your pain . I thank you for your honesty, mostly for your insight about your disease and how it affects you. You gave me a window into my son’s soul and how he may have felt for the twenty-eight years of his life. God Bless you Belinda and continue to reach out for support and love from your family and friends.