The above quote was shared on Facebook and when I found it I knew it had to be part of my collection. This was my life for 28 years and my son’s. Every word here is so true in so many ways.
Raising twin boys, one with severe physical challenges, was not easy. When I look back to those days I realized I missed out on so much. I didn’t have the opportunity to walk my son to school every day and meet with the mother’s of the other children in my son’s class. I wasn’t able to chat and make arrangements to meet later on in the day for coffee. I didn’t make plans for play dates or talk about the latest happenings at the school. I could not volunteer for the Parent’s Association at my son’s school because I was too busy caring for his brother’s needs. My life was full of therapy and doctor appointments. I could not even pick my son up at school when the bus schedule changed and I could not clone myself so I could be at two different places at one time. My son had to wait with the crossing guard until my other son returned home with the bus. I quickly had to roll his wheelchair into our van and pick up my other son who was waiting for me with the crossing guard in all kinds of weather. I then had to take them both home and drag the wheelchair up two flight of stairs so I could get him in the house.
This is what my life was like back then. It was a normal life for me. I learned to accept it and push forward without complaining. However, now that I am older and my lower back hurts from arthritis, probably due to dragging the wheelchair so many times up the stairs, I realize I am that mother in this quote.
It is my wish if you should ever come across a mother who is living this kind of life, remember this quote and maybe approach her, listen to her fears and loneliness. Most likely she needs a friend so she can feel she isn’t different and left out.
This is a sample of what you will read in my new book, “Our Special Child – Jason’s Story” which hopefully will be published later this year with Tate Publishers. It is a good read. It tells a hard story but at the same time, it is not all sad and teary. Jason was a unique child and grew to be a wonderful young man. It is full of many emotions. I can’t wait for the world to read about a truly special child/young man.