A Mother and an Advocate

My Life for 28 Years
My Life for 28 Years

The above quote was shared on Facebook and when I found it I knew it had to be part of my collection. This was my life for 28 years and my son’s. Every word here is so true in so many ways.

Raising twin boys, one with severe physical challenges, was not easy. When I look back to those days I realized I missed out on so much. I didn’t have the opportunity to walk my son to school every day and meet with the mother’s of the other children in my son’s class. I wasn’t able to chat and make arrangements to meet later on in the day for coffee. I didn’t make plans for play dates or talk about the latest happenings at the school. I could not volunteer for the Parent’s Association at my son’s school because I was too busy caring for his brother’s needs. My life was full of therapy and doctor appointments. I could not even pick my son up at school when the bus schedule changed and I could not clone myself so I could be at two different places at one time. My son had to wait with the crossing guard until my other son returned home with the bus. I quickly had to roll his wheelchair into our van and pick up my other son who was waiting for me with the crossing guard in all kinds of weather. I then had to take them both home and drag the wheelchair up two flight of stairs so I could get him in the house.

This is what my life was like back then. It was a normal life for me. I learned to accept it and push forward without complaining. However, now that I am older and my lower back hurts from arthritis, probably due to dragging the wheelchair so many times up the stairs, I realize I am that mother in this quote.

It is my wish if you should ever come across a mother who is living this kind of life, remember this quote and maybe approach her, listen to her fears and loneliness. Most likely she needs a friend so she can feel she isn’t different and left out.

This is a sample of what you will read in my new book, “Our Special Child – Jason’s Story” which hopefully will be published later this year with Tate Publishers. It is a good read. It tells a hard story but at the same time, it is not all sad and teary. Jason was a unique child and grew to be a wonderful young man. It is full of many emotions. I can’t wait for the world to read about a truly special child/young man.

71 thoughts on “A Mother and an Advocate

  1. Wonderful blog! Do you have any helpful hints
    for aspiring writers? I’m planning to start my own site soon but I’m a little lost on everything.
    Would you recommend starting with a free platform like WordPress or go
    for a paid option? There are so many options out there that I’m totally overwhelmed ..
    Any recommendations? Kudos!

    Like

    1. To begin with, thank you for visiting my site and your lovely comment. I did not know what a blog was a few years ago. When I started I used blog.com. I decided to tell my son’s story of this blog. After a few months, and several pages later, I felt I was talking to myself. I didn’t receive any followers and was really frustrated. This was a learning curve for me. The good thing that came out of it is I wrote his story and it is being published as we speak now.

      However, I still wanted to blog because I just loved the concept of writing and people reading what I have to say. I did some research and found WordPress.com. It had very good reviews and I decided to try it.

      That was nine months ago and presently I have 124 followers on WordPress. WordPress is a larger site and it reaches more people on Google search. It is like a family here, everyone is very supportive, loving and very talented. I would totally recommend WordPress for you. Most importantly it is free. Of course they offer you free blogging but they also give you the option to use their specialized templates and updates for a small cost. It is up to you. I purchased an upgrade which gives me better access but you don’t really need it. It is up to you.

      I am a author and an artist and use WordPress for promoting my work. For you, as a writer, you can write short stories or a novel on your blog. My suggestion is to decide on a specific blog style, such as, inspirational writing, writing based on life experiences or writing on a specific subject.

      I try to keep my blog consistent with my theme which is sharing inspiration, spiritual and supportive posts. If a blog is all over the place you will lose the interest of a specific audience.

      Just a few suggestions and ideas. Please do not hesitate to contact me if you need more help. If you do open a blog here on WordPress, please let me know so I can follow you. Here is my email address if you want to contact me scrapperjudedesigns@gmail.com Good luck!!

      Like

    1. I contine to read your message over and over again. You have a flair for writing and I commend you. I must admit I cannot comprehend your message to me. Are you being sincere or sarcastic? I am hoping you are being sincere because I do not understand why one would send me a sarcastic message to a post where I opened my heart and told how life really is raising a physically challenging son who I loved very deeply. Please respond and help me understand. Jude

      Like

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    1. Thank you for your kind comment. You just may be interested to know I wrote a book about my son’s life living with cerebral palsy for 28 years. I can promise you it will be a good read. I opened up in this book about many issues that my husband and I had to deal with and I didn’t leave much out. It should serve as a very informative book for new parents. I hope to achieve awareness of many issues young parents are still dealing with. The book is being published by Tate Publishers and I hope it will be available for pre-sales by the end of the year or next year early.

      Like

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  9. I know this if off topic but I’m looking into starting my own blog and was wondering what all is required to
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    Like

    1. Hi Dawn,

      For the most part WordPress.com is a free blog. They offer free templates. You can choose to pay for a premium blog with a premium template if you want but isn’t necessary.

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      Good luck!

      Like

  10. Very good website you have here but I was wanting to know if you knew of any forums
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    Like

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  12. naturally like your web-site however you need to take a look
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    1. Thank you for visiting my site. I am sorry you find my writing bothersome. I do not pretend to be a professional in any kind of way; I am who I am, a mother who was an advocate to a special needs son. I am paying it forward to help and support others the best way I could.

      Like

    1. Maybe if I believe I can. Look for my book which may be available the end of this year. I will be noting pre-sale info here. I wrote my sons’s story living for 28 years with cerebral palsy. He passed away 12/22/06. The book’s title is Our Special Child-Jason’s Story. Thank you for visiting my blog and your kind comments πŸ™‚
      /

      Like

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